A Rural Perspective of Living with Parkinson Disease

Run Dates:  Ongoing

 

Researchers at the University of Calgary want to understand what it is like living with Parkinson disease in rural communities and what you do that helps you live with Parkinson disease.  The information you and your partner share with us may help improve health programs for people with Parkinson's.  It may also help health care professionals give you better care.

Who is eligible to participate in the study?

Rural couples are eligible to participate.  Participants must:

  • Be a person with Parkinson disease and their care partner (couples that are in a marital-type relationship)
  • Live in rural Alberta in an area outside of a major urban centre AND with a population of less than 10,000
  • Have to travel greater than 50kms to see their family physician and/or neurologist
  • Speak English

What is required of the participants?

Your participation will involve participating in an audio-taped conversation with a student researcher.  These study visits, held at a place and time most convenient to you, may last approximately 45-60 minutes.  You are free to stop the conversation at any time during the visit.  All discussions will be kept strictly confidential to the researchers and study personnel involved.  Your participation is voluntary and you may withdraw from the study at any time.


University:  University of Calgary

Ethics ID:  REB 14-0931

Contact:  Tanis Robinson, PhD (c), MN, RN with the University of Calgary; Faculty of Nursing

                 T: 403-504-3609   E: tarobins@ucalgary.ca


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